If you read about my battle yesterday then you know I went in to the night already a little worse for wear. All day Bekah's numbers were great! At 8ish her tubing got caught on a chair and pulled the site out. With only a few tears we got the site replaced and got ready for bed. David, of course decided that he wasn't going to sleep until 11:00 (that's what I get for letting the kids stay up late all summer). I stayed up until 12 to check Bekah's BG. 367! Curse you darn spaghetti!! Next time I will try to combo bolus with pasta. I give her a correction and fall into a slumber.
3:00- My husband comes in to let me know he got a 417. Oh crap! We decided to wash her hands with a baby wipe and recheck. 404! He gives a correction bolus and I set my alarm for an hour later.
4:30 -388. She is coming down so she is probably fine. Reset alarm for 2 hrs.
6:30- 394 NO!! I am too tired to think straight so I give another correction and recheck in an hour.
7:30-417 I decide that I should do a site change. I get a new site and place it in her fatty tissue on her hip because it is the only thing I can get to that I think she won't freak out about. (she has an aversion to her tummy or bum being pierced) As soon as the site snaps in place, Bekah erupts in a fit of tears "TAKE IT OUT!! I DON"T WANT IT THERE!" she screams. (she was sound asleep as I placed the inset on her) Before I can say new site she has ripped it out. We used an alcohol wipe to remove the old inset in her leg. This is what we saw.
KINKY!!
She wanted a bath to help her calm down so after her bath I gave her a correction via injection and let her rest for an hour or so before we placed a new inset. This time she chose where she wanted it and with no tears it was successfully placed. I'm keeping my fingers crossed that this is a good one.
Every time I asked her to check for ketones I got tears and stubbornness (so not my Bekah). You can't make a child pee (as we all learned when potty training our wee ones). I have on my list to call the endo on Monday and ask for a script for a blood ketone meter, it can't wait the three or so weeks for our appt. (If you want to know why a blood ketone meter is better, read Reyna's blog about )
I'm not feeling like She-RAH today. Today I feel like a pathetic excuse for a pancreas.
Oh you are doing great as a Mom of a T1. We have ALL been there and had our days and our moments. You keep the faith hon. Tomorrow is new day. Sorry about the kinky (and I believe that is the first time I have ever typed that sentence in my life :0)
ReplyDeleteOh DEAR my SHE-RAH!!!! You are amazing. I Joe just had a site failure in his dirt pit...don't worry a post is coming on that one...he was refusing injections, refusing a site change...finally I ended up doing it in the dirt pit...ARGHHH.
ReplyDeleteYou are doing great...there are just too many variables with "D" and not a lot of room for them. (((HUGS)))
Woman...you are SHE-ra!! You so are! ((HUGS)) to you and to your sweet girl. Diabetes isn't easy...there are good days and bad. I hope tomorrow is a good one!
ReplyDeleteIt will get better! Those sets are stubborn in the beginning! You guys will figure out the best way/place for them and how to keep them from pulling out. And you are doing an AWESOME job catching these "kinky" sets.
ReplyDeleteThe good news is that because you are the AWESOME She-RAH that you are...you figured out what was going on and fixed it. Today will be a better day!
ReplyDeleteSounds like you do a FANTASTIC job!! I know what its like to have a kiddo that refuses to let you put their site in where you want it to go. We had a MAJOR running battle with Sugar Boy for the longest time with putting his CGMS on his bum. FINALLY I did what any sleep-deprived, mentally burnt out D Mom would do... I bribed him! haha
ReplyDeleteYou are so NOT a pathetic excuse for a pancreas...even on your worst days with diabetes! Hope things are going better for you and Bekah!
ReplyDelete