Thursday, June 21, 2012

Future CDE...

This is my beautiful daughter, Megan.  This is the child that I caught ready to jump from her two story window becuase life was just too much for her in that moment.  You can't help but love her when you get to know her.  She is funny and fun, loving, caring and compassionate. 

Megan has been accepted to the medical arts program at one of our local high schools and will begin that program in the fall.  Her compassion for her sister has led her to want to be a CDE (Certified Diabetes Educator)  This job requires her to become an RN or registered dietitian before she can get the CDE certification, she has chosen the RN rout.

As she was laying in the hospital bed knowing we were just about to head to the pediatric psych ward she was concerned that being admitted to a psych ward would inhibit her ability to become a CDE.  That was what she was most concerned about, not being able to help other people becuase she was hurting so badly.  Can I just say that I love her heart so much!

I actually think she will be a better CDE because of her experience in the psych ward.  She gained tools that she will be able to pass along to others.  PWD and we caregivers of CWD know that a T1D dx can send you spiraling down to the depth of depression.  There are times when this disease becomes too much.  Megan will be able to help those in that place because of where she has been.

One of the coolest parts of Megan being where she was is that her attending psychiatrist is a PWD (T1) and after we would have our discussions about Megan we would talk about our diabetic alert dog and insulin pumps etc.  Bekah was not allowed on the unit but he met her in the other part of the hospital and thought she was the cutest thing ever, he loved her pump pouch (too sweet boutique) We had a connection that went beyond him caring for one of my children, and it took the edge off of the trauma that we were experiencing. 

Our insurance company is trying to deny the claim of Megan being admitted to the hospital.  I am so thankful that I have had to put that mama bear hat on to fight for stuff for Bekah.  Diabetes has helped me get through this whole experience with Megan so much better than I ever would have had I not been through what I have been through in that last couple of years.  I can't believe I actually said this but I did and I quote.  My method of attack is to first go in and kill them with kindness and then if they push back too hard I won't stop until I have their balls on a platter.  (yeah that was not me two years ago, I would have probably just curled up in a ball and cried) 

Thank you for the nice comments on my last post.  We would love to have your good thoughts and prayers and we step out in to another "new normal".

Saturday, June 16, 2012

Sometimes life gets messy...

I have had bits and pieces of this post swirling around in my head for quite sometime.  You may have noticed my absence from blogging in the past several months.  For lack of a better way to put it, life has gotten a bit messy at our house.  I have had a need to focus on my family and as little as possible be wrapped up in writing and reading blogs.  Each of you is still important to me, I do check in when I can and am keeping many of you in my prayers.

A new illness reared it's ugly head in our home.  It's called depression.  It's a real disease and just like T1D, it effects the whole family.  This post is a bit tricky becuase its not completely my story to share and I need to respect my children's privacy while at the same time I take the bull by the horns just as I have T1D and advocate and educate. 

Both of my teenagers have a form of depression.  Both of my teenagers have been seen in the ER for their depression.  Both of my teenagers have weekly counseling sessions.  Just like activity or mac-n-cheese effects every T1D differently, depression is different for every person.  Also like T1D for no rhyme or reason a bad day can hit and send one spiraling down out of the blue.  One of my children is currently in the pediatric psych ward of the hospital. She is getting the help she needs to not just survive but to hopefully thrive!

I have this urge to go through the pediatric psych ward, which is very plain and almost dingy, and paint "YOU MATTER"  in big bright letters on every wall in every patient room.  Please do me a favor, if you know someone who is down or maybe suffering from depression make sure they know they matter.

I feel like it is important to both educate and advocate for my kids (and others who suffer) becuase mental illness can be so misunderstood.  Mental illness is looked upon as a bit taboo.  As a parent it is difficult to press pass the judgments or the assumed judgements that I did something wrong.  That I am a bad mom becuase my kids are not happy and thriving.  This is where T1D is helping me becuase I know that I did nothing to cause Bekah's T1D and I (still having to convince myself at times) know I did nothing to cause my children's depression. 

I don't have statistics in front of me but we all know that suicide rates are growing especially in our teens.  We as parents have to realize that depression, anxiety etc are a growing epidemic and we can't just tell our kids to snap out of it.  If only it were that easy.  To us they may seem dramatic or needy but in reality they are suffering and many times in silence.  Just like when you have a bad cold you go see a doctor, it is ok to see a counselor, therapist or psychiatrist if you are feeling depressed.  If you have a learning disability, you are not dumb and if you have a mental illness you are not crazy.  I'm not sure where the idea came in that we are less than if we need help. 

Here is another T1D analogy.  Low blood sugar can be lethal and is one of those things that when gets to a point a person doesn't know how to fix on their own becuase the brain runs on glucose.  Depression can be the same.  I don't know the science behind it but there comes a point with depression where you no longer know how to find your way out and if left unattended can spiral down to lethal levels. 

I used to tell people that were going through a tough time that "God will never give you more than you can handle" and I well meaningly thought those words brought comfort.  As life has unraveled and we have had some tough times, I have to say that saying is BS.  The truth is that no matter what gets thrown your way, God will NEVER  LEAVE YOU.  He will never forsake you.  He walks through the mess with you.  If you chose to free fall in to His arms, He will catch you...every single time.  He loves my kids more than I do and He has a purpose and plan for their lives. 

Have you met my kids?  They are AMAZING!!  They love and serve others with passion.  Both of my teeneagers with out the other knowing it and at separate times said they wanted more than anything to take their diabetic sister to a concert (Josh wanted to take Bekah to Taylor Swift and Megan wanted to take her to Justin Beiber) and they were willing to sacrifice a birthday gift and party for themselves to be able to do this for their sister.  Unfortunately in both cases the tickets sold out before we had the money. 

It would be easy to sweep this mess under the carpet and not share.  It would be easy to put a smile on my face and make you think that we are one big happy family.  Fake it 'till you make it right?  I am not judging but too many people do that. I am guilty of it myself.  We don't want people to see our mess because they might judge or think they are better than us because our mess is ugly.  I think we as human beings have so much to learn from each other and some of it has to do with watching others walk through the mess.  I will try not to sugar coat it and I don't know how often I will blog about it becuase there is life to be lived but you are welcome to watch how we walk this out.  We are not going to do this perfectly but God will be glorified and we will praise Him in the mess!