It seems a little scary to me that it was even a question in the state's mind that we would need to be testing Bekah's BGL more than once per day. It makes me sick to think about having that restriction. I was ready to write letters and even show up at the door step of whomever I needed to get what I felt was necessary to care for my daughter. (This cowgirl can play rough if necessary)
The other thing that was in question at this committee meeting, in regards to children with diabetes, was the coverage of CGMS. As much as I would love to have a continuous glucose monitoring system for Bekah, I am able to get by with out one and we still see some pretty great numbers and have minimal lows. A CGMS would help me to detect lows a little before they happen (although Bekah is pretty good at catching them in the 70s) and maybe be better about catching those high numbers to be able to keep a better glycemic control. We had a random 430 the other day (I think there must have been a bubble in her tubing) and we could have corrected sooner with a CGMS detecting it. Her last A1C was 7.2% and I am happy with that although I would love to see it a little lower and a CGMS might help with that. The committee voted against the coverage of CGMS . They decided that it doesn't impact the quality of life of a child with diabetes enough to justify the expense. I think I have to agree. There are a lot of things that the state needs to spend money on and CGMSs are really not a necessary expense (unlike test strips).
Since a CGMS is something we will have to pay out of pocket for, I have done some research and decided to put my money aside for a DAD instead. A diabetes alert dog is an investment that I am excited to make. We had a Siberian husky for almost 11 years. Dakota died just a few days before David was born. It has been 2 years and I think it is time to get another dog and why not a DAD. There are many programs out there and our family has decided to go with Warren Retrievers. I have talked with the owner, Dan Warren, multiple times and his method seems to be top notch and very family oriented. It's not a cheap endeavor but I think would be similar to a CGMS out of pocket over 3 years or so. (If you decided to get one too and go through Warren, tell them I sent you)
|It's not the best picture of our beautiful Dakota but here you can see her ready to play|